Skip to main content

Update from the road!

I'm working away from the office today...so this post is coming from my Blackberry. Please forgive the short nature of this post and any misspelled words!! Julie just sent me a message that Magdalena took a full 23cc feeding earlier today. Right now she is trying to feed her using the bottle. More to come tonight!

Stephen

Comments

  1. Go Magdalena!!! Keep going strong! Hope you guys are resting well!
    Love you! Kristin & Tony

    ReplyDelete
  2. Wow that is incredible. Annabel took longer to get that many cc in her lil body. I wanted to tell you I have a friend here locally whose daughter has a Trisomy and suffered from apnea (was not apremie) but they suggested using a caffine (didn't think it would necessarily work) but it did. Also using a pulse ox instead of apnea monitor. She is now 18mths. old. Praise God! If you want any info on this before bring Magdalena home just email me and I can put you in touch with her. I don't know all the details, but if you wanted to talk with your medical team about this, she can give you more detail and accurate info. Praising and praying for your family, Cathy & Annabel

    ReplyDelete
  3. Anonymous7:26 PM

    Im so happy that Magdalena is goin soo well. I am and will continue to pray for the little girl and family! Jon Gillis told us of Magdalena at church camp and my heart just went out to her. Like I said IM so happy that she and her mom are doin so well!

    ReplyDelete
  4. A good day for such a sweet little one...

    ReplyDelete

Post a Comment

I love to hear from you!

Popular posts from this blog

Magdalena Grace Roberts

This morning Magdalena left this world to be with Jesus. There really isn't too much else I can say but to please pray for Julie and Noah. For now, they do not want any calls, emails or visits. I will you keep you updated on the arrangements.

Making the Decision to Not Make the Decision

I get the question, "Are you going to have any more kids?" asked often. Since finding out Magdalena's diagnosis it was always a tough question to answer. We had always envisioned ourselves with multiple children, but there was always the lingering thought of having to endure this difficult situation again. Although it is less than a one percent chance that we would have another child with T18, the percentage still exists. When pregnant, I said multiple times that I couldn't do this again and my mom constantly reminded me that it is not always that difficult. Being pregnant was physically uncomfortable, but I was referring to the constant emotional exhaustion. As Magdalena continued to do well, Noah and I weren't sure when to begin thinking about other children. Noah and I discussed that I would work really hard at losing my weight, but I was willing to be five pounds more than what I was originally. People poked fun at my not eating Magdalena's birthday cakes...