Sunday, August 31, 2008


That is the noise that makes us jump quickly to our feet. We were glad to have gone without it for two days, but then, in one night it just couldn't stop. Last night we woke a few times to the sound of the noise because Magdalena's heart rate dropped lower than it should. Even this morning it went off again. We enjoy not hearing it for awhile, and it means that her little body is getting rested up for the time when it does.
Right now her little body is resting up for the rest of the day. By her breathing I can tell that she is sleeping well, the way that I really like for her to sleep. With her eyes open or closed she is beautiful in every way. Even the parts of her body that show her syndrome just make her life obviously special.

Also, we are unsure of how the storm will affect our electricity, etc. here so we may not be able to blog for a little while.


  1. Praying for more day with no beeping. She is a most beautiful little girl. Blessings to you!

  2. She is most definitely beautiful!!!! Fearfully and wonderfully made in our God's image...

  3. Praying many many many more days, weeks, months of NO beeping!!! I hope that the link I am going to share with you is not taken in the wrong way - it is a story NOT the same as yours medially, but the same of a situation that the world would call "wrong" but as Christians we know is "right" because of GOD's hand in all of it - the reason I wanted to share is the beautiful song that was written... .....I most definitely am NOT wanting to hurry God's time, I just thought it was beautiful how he conveyed his feelings as a parent. Many many prayers...I check daily to see that beautiful lil face and worry when there isn't an update. Y'all take care. Michelle

  4. Anonymous3:23 PM

    julie and Noah
    Should u need electricity please call me we have lots of extra space

  5. She is are an amazing family.

  6. Praying for you guys! (I'm updated with the blog now!) GOd Bless,

    Karen Fahmer

  7. Dear Julie and Noah,

    Not only is your daughter beautiful she is a fighter!

    Praying for her heart and respiration rates to stabilize. I know you are continuing to enjoy every moment of every day!

    Thanks for sharing your miracle with us!
    Prayers continue from Michigan!

  8. I 1st heard of Magdalena through First Pres augusta and started praying for you. Then my friend, Amy Lotts Hantzis, asked for prayer for a baby born with Trisomy 18.Turned out it's Magdalena.(Amy is friends with Lori)I believe God in His sovereignty keeps bringing you to mind.I have a medically fragile daughter(Abby Rose)who was 2lbs at birth. The pics of Magdalena with her NG tube and 1st bath brought back memories of Abby's first days. I would love to get in touch by e-mail or phone. Know that my husband and I have been praying for you and will keep on praying!

  9. amylotthantzis6:48 PM

    Julie, I am praying for you, Noah, and your beautiful baby! Your strength and courage inspires me. I pray God gives you peaceful rest each night so you will be energized for each day.


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