I can honestly say that between yesterday and today I hit a breaking point. Although we had the tube replaced this morning, Magdalena was continually upset because her feedings were off schedule. I hated to see her like this, not only because she was crying but because it makes it visibly hard for her to breathe and tired. I just want to see her comfortable and happy like how she was when we took the pictures of her in the little basket. Thankfully Loli and Papa came to the rescue today. Loli stopped on the way to her daughters' soccer games so that I could eat something and take a break, and once Papa came later on which allowed me to wash a few towels and pick up while he held her. The things that I did around the house were not urgent, but by doing them and having people watching Magdalena gave me a break. Even while I am writing this I am upstairs while Noah sits downstairs holding Magdalena. It is wonderful just to be given the time to breathe so that I can begin it again tomorrow.
We are beginning the continuous feeding again tonight. It is a machine that feeds Magdalena slowly throughout the night so that she can preserve her energy. Please pray that God will give us patience and endurance during this time of transition, and He will give Magdalena the needed rest so that she feels better. I have seen God do some amazing things since March when we found out about the syndrome, and He continues to truly amaze us with His continuous mercy, mercy far beyond our expectations.