Friday, October 31, 2008
Here is Magdalena in a winter hat that her cousin Emma is letting her borrow!
This picture was not planned! Mimi and Papa were taking care of Magdalena and her cousin, Landon, at the same time!
Magdalena enjoys eating from the bottle as much as she can!
Look what daddy found in his spot when going to bed! She is thinking "I am not moving...find somewhere else to sleep!"
Thursday, October 30, 2008
Magdalena has hit a few milestones that I must share! Because it is so late, I will have to post pictures some other time. First, she has outgrown her first item of clothing! Although all of her clothes are preemies, the sizes vary depending on brand and material. One of the smaller preemie items, and one of my favorites, no longer fits! Between her belly and long body there just is no more room for the little brown onsie with the pink polka dots! She fusses when I change her clothes, so I let her wear it for the last time on Wednesday and did not snap the bottom of the onesie. She would have been too upset if I had tried to change her clothes again.
Also, Magdalena wore her first big girl (newborn size) diaper while at Mimi's tonight. It was still too big, but we were so proud that she had the booty to hold it on her body for a short period of time. Yay, Magdalena!
It is so hard to know the correct feedings to give Magdalena, but as she grows she will continue to increase in the amount of intake. We are in the middle of that change time, so please pray that we don't overfeed or underfeed her. She eats half of her feeding by mouth and the rest by the feeding tube, so we can't just stop when she stops eating. She becomes tired out before her body has taken in enough. We have called the doctor to know what to do for now, and on our next appointment on Tuesday, election day, we will further discuss it.
Monday, October 27, 2008
Sunday, October 26, 2008
After her party Mimi gave her a bath, and she loved it! She put lots of bubbles in the big bath tub, and inside of it put the sponge-like baby bath helper. She just relaxed and enjoyed it. It was the most incredible time that I have seen Magdalena truly enjoying herself.
Saturday, October 25, 2008
On Friday Magdalena had an obvious personality change around. I could see before that she was beginning to feel better, but on Friday her eyes were wide opened. We sang, danced, and had great discussions. She sat in her boppy swing while I did a bit of preparation for spaghetti. Then, she helped me make it! Because Magdalena was doing so well and enjoyed her outing we went out again on Saturday! We were looking for a dress that would fit her small little body for the fall pictures that we are going to have made. And we were not surprised at all to have found this at Sweet Dreams in Madison. (Thanks for helping us so much!) She was such a big girl, and enjoyed looking around at all of the lights! She didn't enjoy riding in her car seat like she used to though because she is so used to being held. I love that she is so spoiled.
One of the strange things for us while we were out on the town was that so many people stopped us to talk about to Magdalena. She is so small so and beautiful that everyone was wanting to ask questions and look at her. Thanks to Karen who gave us the great idea of making the cards with our blog address on it. That way it made it easier to share Magdalena's story without having to give emotional details with complete strangers, yet continuting to share God's love and mercy.
Our special visitor, Katie, came to snuggle with Magdalena
Daddy and Magdalena sleeping last night.
Laura and Magdalena hanging out today at Gigi's house.
Wednesday, October 22, 2008
Right now, Magdalena is resting on my chest. I love having her here in such a peaceful state. I am studying for my Hebrew test in the morning and I just fed her by tube so that she wouldn't wake up hungry and fussy.
Magdalena's cold seems to be getting better, but she still has a ways to go. We are doing our best to keep her chest from becoming too congested, but there is only so much we can do until she completely gets over this cold. Her lungs are already at risk because of the Trisomy-18, so we want to do all that we can to keep them clear. Please pray for her and for us. Thanks!
Yesterday we went back to the NICU where some of the greatest nurses in the free world work. We were so impressed with them while we were living in the hospital after Magdalena was born and we are even more impressed with them now. We were having trouble getting the right sized NG tube for Magdalena through the hospice ministry (a wonderful ministry that has been an incredible blessing to us...thanks Rosa!) because of a technicality with the maker, so we called the NICU to see of they would be able to provide us with more. They told us that we could bring Magdalena in to be weighed so that they could then provide us with more supplies. We had a list of things that we knew we could use, but really didn't expect for them to give us all of it. They did, and then some. They also loved on Magdalena for a while and were very sweet to us. We are so thankful for them.
This afternoon the three of us were sitting on the couch together and something funny happened. Magdalena had just finished eating and she and Julie both got the hiccups at exactly the same time. It was so funny to see them hiccupping back and forth.
Thanks so much for all of your prayers and encouraging comments. May God bless you richly and satisfy you deeply!
Monday, October 20, 2008
Since Saturday Noah and I knew that Magdalena was going to need some special help to feel better. Also, we were uncertain if her problem was only a cold or if her heart problem was beginning to show. So we began to take turns staying awake to hold her. Usually I take a good nap and wake up about midnight when Noah goes to bed for the night. Then, on days when he doesn't have class until later I may go back to bed for another nap. However, tomorrow will be the first day that I won't be able to take that second nap, but I am sure that it will be fine. My body is beginning to adjust to the change, and also, nothing like a STRONG cup of coffee to keep you going.
Magdalena has practically stopped coughing in the last few days and her snot has lessened, and maybe this week we can get back on our old routine of sleeping at night. I have really enjoyed being up with her at night. Although she sleeps most of the time, while I am holding her it has given me great time to really read God's word and afterwards a good book, like Harry Potter.
Well, I am off to bed for now. Thanks so much for your continual prayers.
Sunday, October 19, 2008
Oh, time to snuggle again...
Wednesday, October 15, 2008
Tuesday, October 14, 2008
Sunday, October 12, 2008
On Friday Magdalena got to see her Aunt Sarah again and meet Uncle Gabe and Lindsey. We both had our first visit to a Bass Pro Shop, and she loved it! There were so many things that caught her eye that she was so happy to be there!
Here are some fun pictures of Magdalena and all the people who love her.
Wednesday, October 08, 2008
We are so excited that one of my friends from college is coming to visit for a few days! She is one of those people that can come visit, and I don't feel as though I have to entertain her, so I am excited that I don't have to worry about the dust on my tables and the dirt on the floor! I will post some pictures soon of her hanging out with Magdalena!
Tuesday, October 07, 2008
Sunday, October 05, 2008
And Mimi gave her this bonnet that matches it perfectly!
Also, Noah and I want to use this blog in any way to help show Christ's love through the unique, special life of our daughter. We have made little cards to pass out so that when someone asks questions about her we can easily share her story, and through this tiny little one they can see how big our God truly is. If Magdalena has ever been used in a conversation to share Christ or just to love on someone and you would like some of these little cards, please, email me your address and I would love to send some to you.
Here is a pic of what they look like...
Friday, October 03, 2008
Please check out the "Songs of Love" website at http://www.songsoflove.org/ to learn more about the organization because Magdalena has just received her song! There are a group of volunteer writers who go through the information that is sent in about the child, and they write a specific song for them. I want to be able to share it on the blog, but I am not sure how to add a song. Give us a little time, and hopefully we can figure it out.
Magdalena went to her first bible study on Wednesday night, and she stayed on her best behavior the entire time! She even allowed me to try putting a little bow in her hair. It didn't stick as I would have liked, but it remained there "floating" in her hair, which is getting a little longer. She loved meeting everyone who had been praying for her.
I say all of this to show only one of the few things that Magdalena has accomplished so far in her life. Although I would love to see Magdalena graduate high school, get married, and speak Spanish perfectly, that is not what she is called to do. When Jennifer, my middle sister, was going to the hospital to have Landon I just couldn't go up there to see her. My heart was selfishly broken because I could not understand the diagnosis of my daughter's life, which I had just found out one month prior to Landon's arrival. I was terrified that instead of loving Landon I would be jealous of his health. I think that I finally went up there the next day, but I still waited hours before I really felt as though I had the strength to hold him. (I know that sounds horrible of me, but be patient with me and slowly I will get to the point of telling you all of this.) I cried while he was in my arms. I knew that he would never really know Magdalena, but I know that he will be my sweet reminder in all the many years to come. Every time he hits a marker stone in life I know that I will be reminded of what might have been if Magdalena had never had Trisomy 18. I will cry, but I will never forget that was not her purpose. God did not create her for me to keep but for His glory. And as I watch Landon grow I think he will be "my son" and my reminder of how God blessed us the same year he was born with a special baby.
So, my sweet reminder over the week has been that I truly believe that God created these babies in a special way. We are not to play God and terminate them when we choose because they are not as we think they should be, or try to make them something they are not. They are here on this earth for however long God grants us to be loved and through that love God will teach each of us something. I thought the mother was supposed to teach the child, but I am wrong because she has only been teaching me. For this reason, I try to not be TOO overly protective of her so that many can love on her and be reminded of God's providence. I do believe that God gave us this sweet little girl for many reasons, many of which we may never know. Thank you to the numerous people throughout this week who through indirect ways have reminded me of this.
People were also bringing babies to Jesus to have him touch them. When the disciples saw this, they rebuked them. But Jesus called the children to him and said, "Let the little children come to me, and do not hinder them, for the kingdom of God belongs to such as these. I tell you the truth, anyone who will not receive the kingdom of God like a little child will never enter it."