Just for now I am going to simply post the letter that I have emailed out to some of you. I am sorry for this, but my mind is just full. I need a little bit of time to process it before I spit it out. Please forgive me for the time this may take. Thank you so much for caring and loving for Magdalena, our precious daughter.
Hello Family and Friends,
We are so happy that we will be able to celebrate Magdalena's 33 week birthday tonight! She is have a good summer swimming around.
We met with the neonatologist today who work with all of the surrounding hospitals. This was definitely emotionally exhausting. First, he said that the group sees 3-5 Trisomy 18 babies out of a total of 7,000 babies each year. Given Magdalena's weight of 2 pounds 1 ounce and her disease, she will weigh about 4.5 - 5.0 pounds at the time of her birth. There are some decisions that Noah and I must make before going to the hospital, and in a few weeks we will meet with the doctor who will be working at the time of the birth to let them know our wishes. This doctor was very kind and told us that we should never feel guilty about the decision we make because the disease itself is lethal, and any decision that we make may have no effect. Please pray for the strength to make these decisions.