Wednesday, June 25, 2008

Update

Just for now I am going to simply post the letter that I have emailed out to some of you. I am sorry for this, but my mind is just full. I need a little bit of time to process it before I spit it out. Please forgive me for the time this may take. Thank you so much for caring and loving for Magdalena, our precious daughter.

Hello Family and Friends,
We are so happy that we will be able to celebrate Magdalena's 33 week birthday tonight! She is have a good summer swimming around.
We met with the neonatologist today who work with all of the surrounding hospitals. This was definitely emotionally exhausting. First, he said that the group sees 3-5 Trisomy 18 babies out of a total of 7,000 babies each year. Given Magdalena's weight of 2 pounds 1 ounce and her disease, she will weigh about 4.5 - 5.0 pounds at the time of her birth. There are some decisions that Noah and I must make before going to the hospital, and in a few weeks we will meet with the doctor who will be working at the time of the birth to let them know our wishes. This doctor was very kind and told us that we should never feel guilty about the decision we make because the disease itself is lethal, and any decision that we make may have no effect. Please pray for the strength to make these decisions.

4 comments:

  1. Thank you for the updates. I really do appreciate how you allow so many people to be a part of this time in your life...

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  2. Praying for these hard decisions and peace for you and your husband. If there is anything you may need let me know. I know this sounds so wierd, but I can let you know the keepsakes we did for Larson. Such a surreal time in your life. Rest in today. I say this to you in complete humbleness because it is so very difficult to do. Love to you...Corie
    theobs@usa.net

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  3. I am praying for you and your husband. I am sorry to vent, but I have such issues with the word lethal and the term incompatable with life. I would just love for these drs. to sit and look at Annabel's site and explain lethal to you then. Yes, the majority don't make it very far, that is the reality. But where is the hope. You just never know. I don't want to ever give false hope but truly there is only one that knows. I know you have to make many decisions and plans and I am praying for you. Cathy & Annabel

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  4. I am praying for the Lord to give you His strength, moment by moment as you make the decisions that need to be made. I pray that the doctors words do not steal your hope and joy that this sweet baby gives you right now.
    Only He knows the number of Magdalena's days just as He knows our days. I know in my heart that He will give you what you need for each day and her life matters so much now as she is safe with you, protected by you. You are her mommy now and she feels your love. You can trust the Lord to lead you and carry you through. You have hope in Him.

    Love, Laurie in Ca.

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